Eastern AHSN partnered with the Cambridge Rare Disease Network (CRDN) to develop innovations in response to a survey we ran in partnership on the needs of people living with rare diseases.
One of our priorities to address the everyday issues our citizens face through better use of innovation. To do so effectively, we needed to listen to those with lived experience to understand their challenges. We gathered insights provided by the rare disease community through a survey launched last year at the CRDN’s RAREfest20 event. These insights informed the key areas of highest need.
The live pitching session conducted at RAREsummit21 was the culmination of a competitive process where healthcare innovators submitted their rare disease solutions to us and were judged by a panel of expert judges based on their ability to meet three challenge statements developed through analysis of the survey responses. On the day we featured five selected innovations with the potential to improve the lives of people living with rare diseases.
Our challenge statements:
Meet the innovators:
Everyone who submitted an application will receive innovation pipeline support from Eastern AHSN healthcare innovation experts, but on the day the audience voted Medwise.ai as the solution which best met one or more of the identified challenges. Medwise.ai uses AI-powered search to allow clinicians to instantly access answers to their clinical questions. The tool is designed to improve clinical decision making through enabling fast access to relevant and reliable specialist information and evidence. Previously it has proven in other conditions including keeping clinical teams up to date on the latest research during the response to the COVID-19 pandemic.
The session closing summary was given by Dr Louise Jopling, Commercial Director at Eastern AHSN, who reflected afterwards:
“We were blown away by the quantity and quality of the entries we received and even narrowing it down to five was difficult. We know that great ideas only make an impact when they are put into practice and I hope that through this innovation challenge we created connections which can improve the lives of the millions of people living with or supporting someone with a rare disease.”
Jo Balfour, Managing Director at the Cambridge Rare Disease Network, added:
“RAREsummit is all about raising awareness of rare conditions and their impact on patient groups and this year’s focus was celebrating the power of patient group and industry collaboration for positive impact. The rare disease innovation challenge shows what can be achieved when we start with patient insight and work as a community to address challenges.”
You can visit the virtual event and watch the recordings of each session for 30 days until 7 November 2021 at https://www.camraredisease.org/raresummit21/
If you would like to find out more about the innovations who presented during the innovation challenge session, you can find out more by downloading the pitch information pack.
One of Eastern AHSN’s priorities is to support the development of innovations which improve the everyday lives of people living with rare diseases. We have a wealth of expertise in helping innovators turn their ideas into positive health impact.
Dr Louise Jopling, Commercial Director at Eastern AHSN, explains how we are working to improve the diagnosis and treatment of rare diseases across our region and beyond.
Do you have a great idea that could make a positive health impact?Get involved